Skip to content

Living Proof – Director, Matt Embry

September 15, 2017

 

Living ProofThis is a somewhat unusual documentary. It is a very personal protest against the way in which MS is treated and how the pharmaceutical industry and the MS Society actually prey on victims of the disease and those who would help to fight it through charitable donations. MS is a complex and poorly understood illness that is treated with some powerful drugs by many neurologists while others support diet and exercise as alternatives. The director himself has a diagnosis of MS and so far, has done well by avoiding drug treatments and relying on diet and exercise. Sadly there is little long term research on the methods and effectiveness of various approaches. Embry argues in the film that such studies are discouraged by the pharmaceutical industry because evidence that their treatments are not effective in the long term would hurt them financially as would proof of alternative methods. Of course, the other aspect of the illness is its unpredictable prognosis. Some people decline rapidly while others appear to survive for many years with no significant symptoms and with no treatment. The lack of research is a huge problem that could be addressed by charitable associations like the MS Society but… there is another issue. The fact is that the MS Society solicits millions of dollars but spends over 80% on salaries and marketing and only 16% on research. A fact that Embry makes very clear. He has set up an alternative charity – MS Hope – that promotes his alternative approach to care but also does not have much more than anecdotal evidence to support it. I had mixed feelings about this film but it did convince me that charities like the MS Society are compromised, that we really can’t trust the pharmaceutical industry to look out for out best interests and we really need to fund some serious long-term studies on MS and MS treatments. I suspect this movie might have a limited audience unfortunately

http://www.tiff.net/tiff/living-proof/

Comments are closed.

%d bloggers like this: